Monday, February 17, 2014

19w3d Swimming and sore thigh

Tiny Fish is somersaulting and kicking as I type this :)

I've been swimming twice with the insulin pump infusion site and Dexcom transmitter in. At first, on the weekend, I was worried about going untethered from the pump (would I go too high without insulin? Or too low with all the exercise. Answer = too low) and what the pool water might do to the adhesives or reliability of the Dexcom.

Turns out it was fine. My Dexcom has a whopping great piece of opsite Flexifix taped over it (with a little window so the transmitter can poke through) so the adhesive was really no issue. The infusion site (inset30) was at the end of its 3 days so was already a little worse for wear.

All in all it felt marvelous to be in the water and we went again tonight after work. Even with a banana beforehand I still drop between 4 - 6mmol in 40 mins untethered. But then I do climb to about 11mmol a couple of hours later. This rise is due to the lack of basal plus the emergency juice after the swim. Must try basal reduction prior to the swim itself.

In other news: OWWWWW!!!

My right thigh is hu-uu-rting! It gets tingly then goes numb on the main muscle down the front/outside of the thigh. Then it gets achy. Then the ache gets a bit stabby. Then my hip gets achy and stabby cos it feels all left out. Long story short: standing and walking hurt. Standing to take a shower hurts. Sitting or lying down makes it better. Even though I have a job that has many hours in front of a computer, I still do a lot of traipsing around campus and it's surprising how many people think it's cool to have long-winded chats in the hallway, standing up, with no chairs ready to rescue me!

I asked my OB about this when I met him the other week and he wasn't too concerned, just said to watch if it got worse. Well, it's definitely worse.

So I gave in and texted my midwife asking her advice. She thinks it might either be a pinched nerve or maybe a torn ligament in my hip. I am going to call a physiotherapist (I can do self referral which is quicker, but it would be pay out of pocket either way) tomorrow morning hopefully.

Oh and I had a quick unexpected catchup with my pump reps T and K today up at the hospital. On Saturday night I was having a headache, exhaustion, and lows. The Dexcom and the vibe (both of which had new sites inserted that evening after the first swim) took it upon themselves to wake me up no less than 20 times with various low alarms, false low alarms, error code 0, error code 1, calibration warnings, and reminders that the calibrations were failing. Bah! By 3am I gave up and turned the CGM functionality off both devices just so I could get some sleep.

An email to my rep in the morning and she offered to meet up and bring me a replacement sensor, and explain the error codes. Since they are normally in another city it was an unexpected pleasure to get to see both of them face to face. :)

And now for some devastating news. You might want to click away now if you're not in a particularly happy spot right now as this next bit is just utterly heartbreaking :(

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My little second cousin, a 10 year old boy, has just been diagnosed with a very rare form of cancer with a simply awful prognosis. He's already about to have his second surgery in a month, the first removed a strange lump and now that pathology has finally identified it he's been rushed to the children's hospital. He is not expected to out live his parents. Apart from some radical drugs in clinical trials, surgeries are the only option. Chemo and radiation don't really work well for this type. Our whole family is pretty much in shock and I would love advice from anyone about how I can best support my cousins at this time.

So, that's it for now. I don't expect to be posting many updates about my cousin as that's not really my story to tell. I'll just see how it goes and do what I can for them.

2 comments:

  1. Glad to hear you enjoyed swimming. I'm so so sorry about your cousin! My thoughts and prayers are with him and your family!

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  2. No real comments on the pregnancy/diabetes part of your post, as every person needs to figure out what works for them, but as for your cousin, I'm so sorry. While we didn't get to keep our kids for nearly as long as 10 years, I think there are still some things I can share that might help you and your family. Make as many memories as you can. If the prognosis is correct, and there's limited time left with him, make every moment special. These will likely become the best and worst memories of the parents' lives. The worst because their son is dying, but the best because they are 100% filled with love. Take pictures and videos. I'm not sure how crafty you are, but you could make a scrapbook of his life. Once he does pass, NEVER FORGET. Birthdays will be difficult, the anniversary of his death will be difficult, random things will send their emotions spiraling without notice. Be willing to listen to whatever they want to talk about. Don't presume that you know exactly what they're are going through. Sometimes all they need is a hug. Help prepare them meals. If they have other children, offer to help with any scheduling needs so that the siblings can be taken care of by family so the parents can spend some time at the hospital with the 10-year old without worrying about being negligent. Above all, love them and do not judge their choices or reactions.

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