It's nearly midnight and I am a bit of a mess. I have been battling high blood sugars now (above 15mmol) for several hours and I'm now 2.9mmol. Very low. Amazed I can type coherently even.
This progesterone is totally kicking my butt. Plus I suspect I may be making my own now.
Today was a tough class to teach. I didn't enjoy it and my heart rate got raised. So did my bloodsugar from the stress. That is where today's roller coaster started.
After lunch a high caught me and wouldn't let go for several hours. This one I attribute to accidentally buying a white-bread sandwich that I thought was brown bread. Boo. Sux when something so stupid can wreck and ruin things like it did.
I went low just at the time before dinner when my Diabetes Nurse Educator phoned. We have been playing phone tag for a couple of weeks now, and since she didn't know that I'm now pregnant it was vital I talk to her about these stubborn highs.
Actually I thought I wasnt doing too bad, diabetes-wise, before she said it was urgent to get these under control, and that it would have been more ideal if they had been under control at conception. I said "they were!!" I have been working so hard to keep my numbers safe. And I was doing bloody well before IVF drugs and pregnancy hormones jumped in the ball-pit!
Anyway, it was a friendly Chet and she gave me lots of new (much stronger) insulin to carb ratios which will increase my meal boluses by 30 - 50%. That's huge and I'm not convinced. But I tried it for dinner (another bad choice: takeout, but I'm exhausted, we both are) and at first I thought oh hey this is working! I'm flatlining after a burger! Brill!
And then suddenly about and hour after dinner my blood glucose just took a massive ramp up. Climbing and climbing, until it got over 18mmol!!! I was frantic. Drinking loads of water, giving as much insulin as I dared. Still nothing worked and it kept rising.
I have read of other T1D pregnant women feeling guilty over high blood sugar, but this wasn't just guilt, this was fear, terror. High blood sugars can result in all sorts of bad things for the foetus which I daren't write here. Just google type 1 diabetes and pregnant to scare yourself shirtless. :(
I gave upwards of 4 correction boluses and put a 30% temp basal increase in place as I was about to have more progesterone which will make my blood sugar rise.
And them I decided to check the line for bubble. Bloody bubbles! With only 57 units left (I know, that sounds like too much to throw away to me too) I ripped out the set and put a new infusion site in. When I pulled the cartridge out of my pump it looked all bubbly like sprite. Useless. So, bubbles are another defendant in the case against high blood sugars.
We toddled off to bed, and I was finally dropping, but with double arrows straight down. I felt terrible, the cramping was just cramping up as it tends to do whenever my blood sugar goes low or high or moves too fast (same thing happens on period so not too concerned) and I was exhausted from the day and trying to beat back highs.
I cried and told Hubby I was scared. I'm doing what I feel is my best and it's not good enough. It's one thing to avoid caffeine, but when it comes to the really important stuff like controlling my blood sugar I can't do it. I'm trying so hard. It feels like everything I do with my diabetes management is hurting me, and worst, hurting my baby. My baby. Wow. That made me well up. I feel very helpless not being able to provide a safe, stable blood sugar environment. I'm doing my best. I won't give up I will get this sorted. I knew it wouldn't be easy.
But sometimes you just have to lie there and be held as you pour your heart out to you soul mate and he cuddles you and tells you it's going to be fine and that he's proud of the amazing job you're doing.
I'm crying through this. I know a lot of it is probably the hormones giving my emotions a hiding, and coming out of a low, (5.2 now, thank God) and the sheer overwhelmed-ness I feel having gone through this IVF process. The lead up has been so long and harrowing. Now that the embryo is in me, I feel an enormous responsibility to do my best to keep as healthy as possible.
So, I am being proactive and making a plan:
- DNE's new insulin to carb ratios may be too strong, but I shall try them for a couple of days and then change them if necessary.
- I will txt my DNE to ask advice
- I will try to avoid white breads, rice, etc and other high-GI foods in large quantities.
- don't be lazy. Cook good food. We do get in the habit of eating out once or twice maybe per week.
- be gentle when correcting a low, and always have a stash of glucose with me.
- be gentle and kind to myself, and practice stress-reduction techniques.
- realize that I can only do my best, and what will be will be
Second beta is tomorrow. I have no symptoms to doubt this pregnancy, but I am so, so scared. Please send your love and hope and thoughts to us for a good rising beta.
Thank you for all of your support. This is scary and knowing I'm not alone in these thoughts really helps to calm me.